Dr. Shrestha, leads the Atrium Health enterprise strategy, including planning and tactical direction for strategic roadmap and beyond. In addition, he spearheads a renewed focus on innovation, launching new healthcare inventions, discoveries and ideas to benefit patients and the communities Atrium Health serves. Dr. Shrestha is a respected thought leader and visionary in the field of healthcare information technology and was recently recognized as “Executive of the Year” by Healthcare Dive and was acknowledged as one of the “Top 20 Health IT Leaders Driving Change” and as a “Top Healthcare Innovator” by InformationWeek. In addition, he is on the Board of Directors of the Healthcare Information and Management Systems Society (HIMSS) and is the Chairman of the HIMSS Innovation Committee, and Co-chair of Health Datapalooza.
Andrea Downing is a Community Data Organizer.
In 2005, Andrea learned she carried a BRCA1 mutation. This mutation was passed from her great grandmother to her grandmother to her mother and now to Andrea. Frustrated with lack of options beyond removing body parts, Andrea started Brave Bosom as in 2012 as a place to write about her own experiences relating to BRCA. As Brave Bosom evolved, it became a place to educate others about how our collective data impacts the hereditary cancer community.
In 2018 she started adding ‘accidental white hat hacker’ to her repertoire of random titles through her work at Brave Bosom. Back in 2013, Andrea first started speaking and writing as a media spokesperson for one of the plaintiffs in Association of Molecular Pathology vs. Myriad Genetics. This case was a critical turning point for her community because the Supreme Court decided whether BRCA – and all other human genes- could be patented. After joining the ePatient program at Stanford Medicine X in 2014, she began speaking publicly about issues affecting the BRCA Community.
A Dialogue with Nurses on Technology at HIMSS19
LGBTQ people faces discrimination and mistreatment in healthcare settings across the US. According to studies 29% of transgender people have stated that they were discriminated agaisnt by their doctors by way of refusal to provide care due to their sexual identity or perceived sexual identity. Patient Orator is brining awareness to barriers faced by the LGBTQ community in healthcare, emphasizing the need for cultural competency in the medical industry.
Meet Derrick Reyes CEO and Co-founder of Queerly Health.
Queerly Health is a digital health platform that bridges the gap between the LGBTQ community and safe, comprehensive, and culturally competent health and wellness providers. Reyes shares that their own personal experience with having difficulty to navigate the healthcare space. As well as other LGBTQ people, people that they had worked with, including friends and family. Reyes questions: If the future of healthcare in this county, will digital health, will digital health be LGBTQ inclusive? They state that they will ensure that it is.
Understanding LGBT Barriers in Health Care
Like many Americans, cost is a big barrier to access. Location, in a lot of metropolitan areas you can find pretty easily LGBTQ health clinics but what happens if you're a trans woman who lives in Kansas. Another barrier to access is discrimination. Over 50 percent of LGBTQ people experience discrimination in healthcare settings. Lack of provider knowledge is a huge barrier. It’s not really taught among providers a whole lot. Lastly, anti LGBTQ laws at the state and federal level.
LGBTQ Health & Stigma
We have to call things by their names. Addressing stigma whether it's in the healthcare industry or any industry at all, we see a near future where all healthcare settings are going to be LGBTQ inclusive. We cannot speak like that (discriminatory), we can't see that future unless we know that right now there's a stigma that needs addressing. It's important to address the injustices and prejudices that people have to face, that eventually leads to inadequacies in industries like the healthcare industry, when it comes to LGBTQ people.
Suggestions for Providers
A great place for providers to start is with themselves and try to gauge what level of explicit or implicit biases they may have towards LGBTQ people. For example: Do you know about LGBTQ people? Do you know how to treat LGBTQ people? Do you know any LGBTQ people? If you don't now you do! It's really important that people start to ask themselves; How can I create space for people who don't have identities like me or maybe have marginalized identities? Start by having those conversations with yourself, and then ask other people, other LGBTQ people. Ask the internet, how do I make myself, my practice more LGBTQ inclusive.
May is Mental Health Awareness Month. Did you know that 43.8 million adults experience mental illness in a given year (NIMH .org)? In an effort to amplify the voices of those living with or experiencing mental health or behavioral health issues, here are a few video discussions aiming to bring awareness to stigma and its effect on wellbeing.
GABE HOWARD is an award-winning writer and speaker who lives with bipolar and anxiety disorders. In 2003, he was formally diagnosed with bipolar and anxiety disorders after being committed to a psychiatric hospital.
“Its weird that in this country we separate out mental health and physical health because mental health is your brain. what’s more physical than your brain?
Rie Lopez, MPH A ‘Professional Patient’, Rie is a health educator, skilled public speaker and writer, and serves as a patient advocate for mental health, chronic pain conditions, and clinical trials. Rie is also actively using her voice on social media
“ From a societal level trying to embrace that mental health is as important to our physical health. A lot of it comes down to making sure that people understand that they are as important”.