"The government can continue to provide better services for transportation for disabled people, to actually advertise those services in a way that people are going to see them. That would make a huge difference" Heather C. Aspell
Suggestions for healthcare providers:
Having the providers have more time with patients. I'm not really sure what in the system needs to change in order to make that happen but I know that its not the physicians themselves are not creating the limitations on time. I know doctors who want to spend more time with their patients and they can't, so theres clearly something higher up in the system that needs to change.
Suggestions for government:
The government can continue to provide better services for transportation for disabled people, to actually advertise those services in a way that people are going to see them. That would make a huge difference. So many people don't know of the services that are already there because they are being marketed more toward the senior population.
Suggestions for decision makers:
I think we need to have more collaborative discussions between people who advocate for the current insurance system, that we have here in the U.S and a system like they have in Canada and say ok what are the problems with both systems and how can we create some kind of new idea that we haven't come up with yet thats going to allow people with serious chronic illness to get access to specialist without long wait times but also allow people with common ailments to have regular access to preventative healthcare that is affordable.
Unfortunately anyone can ill or disabled so these issues about healthcare, their important, they affect everyone. You may be healthy right now but unfortunately you or someone you love may not be that way. It doesn't matter how old they are, it doesn't matter what their race, gender, ethnicity is you can be affected. Don't pass judgement on those that you encounter who may be chronically ill or disabled. Be mindful of the fact that it could affect anyone, when you're thinking about issues related to healthcare or insurance. and the political area as well.
Overall message to society:
I think the number one thing patients that are chronically ill can do is to start sharing their stories. I think that individual stories are the most persuasive thing that we have. If everyone begins to share a little bit about themselves and their experience with just one person or with thousands through a social media account, then people will begin to get a little bit of a window into what life is like for people like us. Gradually we'll be able to create a shift in what society thinks it means to be disabled or chronically ill.