LGBTQ people faces discrimination and mistreatment in healthcare settings across the US. According to studies 29% of transgender people have stated that they were discriminated agaisnt by their doctors by way of refusal to provide care due to their sexual identity or perceived sexual identity. Patient Orator is brining awareness to barriers faced by the LGBTQ community in healthcare, emphasizing the need for cultural competency in the medical industry.
Meet Derrick Reyes CEO and Co-founder of Queerly Health.
Queerly Health is a digital health platform that bridges the gap between the LGBTQ community and safe, comprehensive, and culturally competent health and wellness providers. Reyes shares that their own personal experience with having difficulty to navigate the healthcare space. As well as other LGBTQ people, people that they had worked with, including friends and family. Reyes questions: If the future of healthcare in this county, will digital health, will digital health be LGBTQ inclusive? They state that they will ensure that it is.
Understanding LGBT Barriers in Health Care
Like many Americans, cost is a big barrier to access. Location, in a lot of metropolitan areas you can find pretty easily LGBTQ health clinics but what happens if you're a trans woman who lives in Kansas. Another barrier to access is discrimination. Over 50 percent of LGBTQ people experience discrimination in healthcare settings. Lack of provider knowledge is a huge barrier. It’s not really taught among providers a whole lot. Lastly, anti LGBTQ laws at the state and federal level.
LGBTQ Health & Stigma
We have to call things by their names. Addressing stigma whether it's in the healthcare industry or any industry at all, we see a near future where all healthcare settings are going to be LGBTQ inclusive. We cannot speak like that (discriminatory), we can't see that future unless we know that right now there's a stigma that needs addressing. It's important to address the injustices and prejudices that people have to face, that eventually leads to inadequacies in industries like the healthcare industry, when it comes to LGBTQ people.
Suggestions for Providers
A great place for providers to start is with themselves and try to gauge what level of explicit or implicit biases they may have towards LGBTQ people. For example: Do you know about LGBTQ people? Do you know how to treat LGBTQ people? Do you know any LGBTQ people? If you don't now you do! It's really important that people start to ask themselves; How can I create space for people who don't have identities like me or maybe have marginalized identities? Start by having those conversations with yourself, and then ask other people, other LGBTQ people. Ask the internet, how do I make myself, my practice more LGBTQ inclusive.
May is Mental Health Awareness Month. Did you know that 43.8 million adults experience mental illness in a given year (NIMH .org)? In an effort to amplify the voices of those living with or experiencing mental health or behavioral health issues, here are a few video discussions aiming to bring awareness to stigma and its effect on wellbeing.
GABE HOWARD is an award-winning writer and speaker who lives with bipolar and anxiety disorders. In 2003, he was formally diagnosed with bipolar and anxiety disorders after being committed to a psychiatric hospital.
“Its weird that in this country we separate out mental health and physical health because mental health is your brain. what’s more physical than your brain?
Rie Lopez, MPH A ‘Professional Patient’, Rie is a health educator, skilled public speaker and writer, and serves as a patient advocate for mental health, chronic pain conditions, and clinical trials. Rie is also actively using her voice on social media
“ From a societal level trying to embrace that mental health is as important to our physical health. A lot of it comes down to making sure that people understand that they are as important”.
At the 2019 HXD Conference by Mad*Pow we asked patients, clinicians, researchers, designers, public health advocates and other stakeholders in the healthcare ecosystem to share their thoughts on designing thinking and its role in improving healthcare experiences for people interaction with the healthcare system. Here is a recap featuring snippets of these conversations.
Mad*Pow's Center for Health Experience Design is a community of change makers who take a collaborative approach to improving health and humanizing the health system. With almost two decades of experience partnering with health organizations, the Center leads the design and delivery of transformative health services, behavior change interventions, and digital solutions.
Meet Tami Rich A Patient & Family Advocate
Tami Rich, is a passionate ePatient / eFamily partner with 2 decades of medical case management experience for her son Jameson, who was diagnosed at birth with chronic, complex congenital heart disease. After participating in patient / family included bedside daily rounds at Mass General Hospital for Children, Tami championed its’ use in 2009 as a member on the newly formed Boston Children’s Family Advisory Council. By 2011, Family-Centered Rounding (FCR) was being rolled out throughout BCH. Three years later, FCR formed the basis for iPASS, an MD handoff tool newly required to meet JCAHO standards for safe care.
Complex Congenital Heart Disease | Parent Caregiver | Work & Caregiving | Family Caregiver
Key Phrases: Medical Error | Patient Safety | Medication Error | Handoff Errors | Family Care giver | Opportunity for Better Design | Design Thinking | Handoff Errors
Mom Caregiver | Patient Safety | Change of Shift | Hospital Transitions | Pediatrics to Adult Ward | ER | OR | ICU
Key Phrases: Disability Rights, Consulting with Patients | Discharge Process | Family Centered Bedside Rounds | Scientific Model of Change | Inclusive Language
MEET MESHARI F ALWASHMI, BN, MSc. (MED), Ph.D. (c) | Digital Health
Meshari is an epidemiologist and a Ph.D. candidate. His primary research interest is user-centered design and usability testing of innovative technologies in chronic disease management. He has published and peer-reviewed articles in the Canadian Agency for Drugs and Technologies in Health and the Journal of mHealth and uHealth.
Key Phrases: Design Thinking | Bad Design | Good Design | End Users | Patient Users | Healthcare Professionals | Patient | Health Care Professional | Global Health
MEET JOHNATHAN PODOLSKY A FORMER ARCHITECT, DESIGNING HOSPITALS, CLINICAL FACILITIES AND COMMUNITY SPACES.
With a passion to design what people experience in these spaces, drove Jonathan to become a service designer in 2005 when the practice was new and methodology rapidly evolving. Over the next 13 years Jonathan helped introduce and evolve the practice of service design at multiple companies, eventually leading Experience Strategy and Service Design at Mad*Pow. Jonathan is an occasional contributor to Service Design Magazine and has taught Service Designclasses at Tufts University and Mass College of Art.
Key Phrases: Design Thinking | Patient Experience | Pediatrics | Rare Disease | Design Experience
Meet Kathryn Hautanen. Kathryn boasts degrees in Physics, Materials Science, Nuclear Engineering, and Design Strategy.
She's taking her commitment to innovation in health care to the CHXD, which provides a base for organizations to connect and generate a shared understanding of problems faced in health care experience design and collaborate around solutions. Partners have included Boston Children's Hospital, Massachusetts Health Quality Partners, Cigna, Muskegon Family Care, the U.S. Department of Health and Human Services, and Behavioral Health Innovators (BHI).
Key Phrases: Design for Change | Collaboration in Healthcare | Innovation Challenge | Mad*Pow
Meet Vanessa Mason a public health educated advisor to health care startups. Enthusiastic about data & impact
She is a research director for the Institute for the Future's Future 50 Partnership, a circle of future-smart organizations who think strategically about near-term choices to reshape the long-term future of their organizations.
Key Phases: Global Health | Digital Health | Public Health | Improving Health outcome | Health Care | Wellbeing
Key Phrases: Global Health | Burnout | Digital Health Improving Health outcome | Non Traditional Entrepreneurs Social Impact
Key Phrases: Traditionalism | Opportunities for Startups | Affirmative Spaces | Wellbeing & Impact
Key Phrases: Public Health, Futurist, Addressing Illness, Disparities, Optimal state of Being, Health & Wellness, Design Thinking
Meet Jen Briselli an insatiable curiosity and passion for science, education, and empowering people through design.
She considers herself an enabler more than a problem solver, because she dislikes framing every design opportunity as a problem to be solved.
Key Phrases: Design Thinking | Collaboration in Healthcare | Patient Experience | Behavior Change | Experience Innovation | Clinician Collaboration
Meet Dr. Bryce Rutter, Founder and CEO of Metaphase Design Group Inc., is a leading expert in the research, ergonomics and design of medical products and worldwide specialist in hand-intensive products and packaging.
His work includes collaborations with numerous global prestigious brands and high-profile start-ups on products ranging from robotic surgical systems, powered and manual instrument design, and drug delivery systems to disposables, mobile and wearable devices to personal care products, IFUs, and usability and contextual inquiry research programs. Metaphase delivers innovative designs that redefine industry standards, invigorate sleepy brands and create new product categories. Under Dr. Rutter’s leadership, Metaphase has received more than 120 international design excellence awards and 117 patents. Most recently, he was awarded a Silver 2019 Edison Award for the design of I.V. House’s TLC Splints, revolutionizing intravenous site therapy. Dr. Rutter holds degrees in industrial design and PhD in kinesiology, specializing in hand function.
Key Phrases: Clinical innovation | Smart Technology | User Experience | Medical Device |
Robotic Surgical Systems
Meet Kevin Dedner, MPH founder and CEO of Henry-Health, a technology start-up, app and digital platform that provides self-care support and mental health services to black men.
Kevin has a deep commitment to the health and well-being of black men. He has transformed having experienced depression into a tool for helping black men adequately address their emotional and mental health. An award-winning public speaker, Kevin brings over 15 years of experience in public health having worked on a variety of issues including childhood obesity, HIV/AIDS, to tobacco control. He has led strategic planning processes and facilitated convenings on behalf of several clients including the nation’s largest public health foundation, the Robert Wood Johnson Foundation. A recovering politico, Kevin has worked on political campaigns and successfully led health policy wins. However, these days, Kevin is focused on Henry Health's moonshot of increasing the life expectancy of black men by ten years within the next twenty-five years.
Key Phrases: Telatheraphy | Lifestyle change | Mental health | Wellbeing | Public Health | Black Men’s Health
Key Phrases: Cultural Competency | Social Determinants of Health | Behavioral Health | Public Health
Meet Elizabeth Markle, Ph.D., a licensed psychologist, professor, and chair of Community Mental Health at California Institute of Integral Studies.
She is also Founder and Executive Director of Open Source Wellness, a clinical-community integration initiative offering experiential behavioral health and wellness via a "Behavioral Pharmacy" approach for individuals and families. Dedicated to multitheoretical and multi-level approaches to individual and community health and healing, her research and entrepreneurship are focused on systems design to generate social support, social capital, and social sustainability in health and healthcare.
Key Phrases: Transforming Healthcare | Population Health | Behavioral Health, | Empathy | Community Health | Human Needs | Clinical System
Key Phrases: Social Systems | Health Technology | Wholistic Care | Community Health | Design Thinking
The buzzword of social determinants has demonstrated a shift in health care toward a greater focus on the person outside the patient. Health and provider organizations have found that a persons zip code is as much an indicator of health as their genetic code and that social barriers must be addressed to obtain the best outcomes.
Here are some conversations captured at #CCTC on how providers are addressing SDOH and demonstrating measurable ROI through creating successful partnerships, utilizing actionable data, and implementing sustainable health initiatives. For more lineup of speakers visit World Congress website.
Vice President, Behavioral Health and Community Integration
Access Community Health Network
Brian is a member of the Access Community Health Network Medical Operations Leadership Team, shepherding a variety of programs focused on men's health, maternal and child health, behavioral health, and infectious disease. His portfolio now includes the development and implementation of initiatives to address the social determinants affecting the health of the patients served by the organization.
Chief Population Health Officer
In this role, she is responsible for integrating our community health strategy with population health. She works with market leaders, payer partners and community stakeholders to develop community-based population health and risk sharing models that focus on wellness and disease prevention for better health outcomes - with focus given to social determinants and our most vulnerable and needy populations.
Julianna Sellett is the Vice President of Community Health Initiatives for the Carle Health System.
She has over 28 years of health care experience, with special interest in organizational strategy, systems management, performance improvement, population health, as well as cross-sector community integration. Her current work focuses on improving the health, educational achievement, and economic prosperity of disadvantaged populations, with special focus on early childhood development. She is a Registered Nurse (RN) with a Doctoral degree in Nursing Practice (DNP), Master’s degree in Nursing (MSN), and Master’s degree in Business Administration (MBA). She is a Certified Professional in Healthcare Quality (CPHQ) and is Certified in Executive Nursing Practice (CENP).